HSF FTP HS Research Database: supporting those with HS and those who study & treat HS.

Thank you for participating in
our April-May 2007 Research Database User Survey. The results of the survey can be downloaded HERE.

A considerable amount of Hidradenitis Suppurativa research has been conducted over the years, yet many of these documents are not easily accessible to either medical professionals or patients. By increasing the availability of past and current medical research, the HSF seeks to improve the quality of life for people with HS, enhance the quality of medical care they receive, and raise the profile and understanding of this disease on a global basis. The HSF also hopes to encourage and hasten research by providing this resource.

The HSF Research Database empowers and facilitates varying degrees of direct patient support by providing information to government, legal, health and social service organizations, as well as patient advocacy/self-help and support groups around the world. The HSF Database is a tribute to all of the people who have suffered from HS, and an acknowledgment and thanks to those who have volunteered to be studied. It is also an honor roll of the caring doctors and researchers who have helped illuminate the mysteries of HS.

Providing such a comprehensive, valuable and accurate resource takes a considerable amount of time, effort, and expense. Thanks to your financial support, we are able to continually expand and maintain this priceless resource. Please visit our donate page and help us help those with HS.

All of the documents are presented in PDF format, listed by publication date and author. You must have a user name and password to access the FTP database, as well as Adobe Acrobat Reader to view the documents. Please submit the form below to access this FREE database.

Please complete and submit the form below to gain access to the FTP site. You will be contacted with instructions on how to access the database as soon as your request has been processed. The information that you provide is private, and will not be shared with anyone without your express permission.

ACCESSING THE HSF FTP RESEARCH DATABASE
The HSF FTP Database can usually be viewed like a normal web page using a web browser. The difference is that the URL or what is typed into the address bar to get to the FTP DOES NOT have the following in front of it: http:// or http://www. Once you have received access details, if you have problems accessing the database you may need to install FTP client software. These programs are very helpful in accessing FTP sites, and are the best way to navigate, sort and download FTP data. If you are on a PC we could suggest the following free FTP program: http://www.smartftp.com/ and if you are on a Mac we could suggest http://www.apple.com/downloads/macosx/networking_security/simpleftp.html

WHAT CAN BE FOUND IN THE HSF FTP RESEARCH DATABASE?
The HSF FTP Research database has been separated into three equally important areas:

1. HSF MSAB PEER-REVIEWED DATABASE with ANNOTATIONS
This database contains historical medical research which is selected, reviewed, categorized and annotated by the HSF Medical and Scientific Advisory Board from December 2005 and completed in May 2006. The HSF MSAB Peer-Reviewed Database specifically targets treating physicians and skin researchers. Doctors can use this resource to aid their treatment of those with HS. They need to know what they can tell the patient; which clinical and laboratory examinations are required; which treatments must be discussed; and what the preferred options are. A content list is included within the Annotation PDF by file name, file section and year of publication. These documents have been published in peer-reviewed medical and scientific journals. All documents are in English.

2. HSF FTP GLOBAL RESEARCH DATABASE
This database contains historical medical research from 1833 to the current day in year order, and documents have been selected by Michelle Barlow and Rob Howes, co-founders of the Hidradenitis Suppurativa Foundation, Inc. The majority of these documents have been published in peer-reviewed medical and scientific journals and include internet resources edited and/or authored by physicians. Within this folder are three sub-folders which contain selected publications detailing relevant skin-related research, historical evidence for the misdiagnosis of HS and information to aid in the differentiation of HS from other like-diseases. (Folder X: General Disease Review which talks of HS; Folder Y: Uncertain Diagnosis of HS_Misdiagnosis of HS; and Folder Z: General Skin Research.) Two styles of the HSF FTP Global Research Database content are provided in PDF format; the first is by author (Academic Medicine format) and the second is by year of publication (non-Academic medicine format). Documents are predominately in the English language; other documents can be found in the following languages: Dutch, French, German, Italian, Japanese, Korean, Polish, Portuguese, Spanish, Swedish and Turkish.

To view the current HSF FTP Global Research Database content list by AUTHOR click here.

To view the current global HSF FTP Global Research Database content list by DATE click here.

3. HS CASE LAW & MEDIA ITEMS
This database contains historical perspectives of Hidradenitis Suppurativa from media and US case law from 1966 to the present day in year order, selected by Michelle Barlow and Rob Howes, co-founders of the Hidradenitis Suppurativa Foundation, Inc. Media and legal perspectives of this disease have the potential to provide hope, inspiration and social justice. A content list is provided in PDF by year of publication, file name and source. These items have been published in newspapers, magazines and on the internet. All documents are in English.

To view the current HS Case Law & Media Items content list by DATE click here.

Use of Articles on the HSF FTP Research Database:
Copyright laws may restrict the use of some of the articles on the FTP site. These articles are provided by the HSF for the exclusive use in teaching, scholarship, or research regarding Hidradenitis Suppurativa. To the best of our knowledge, in supplying this material to you we have followed the guidelines of Title 17, Chapter 1, Section 107 regarding fair use of copyright materials. We hope that in making available the relevant information on Hidradenitis Suppurativa, that this will be a means of furthering research to find effective therapies and a cure for HS.

Please send comments and additional full text source information to: info@hs-foundation.org