Hidradenitis Suppurativa Foundation News

As significant news occurs, HSF will post updates as quickly as possible.


Dr. Noah Scheinfeld, JANUARY 21, 1964 – JUNE 3, 2019

“It is with profound shock and sadness that we mourn the loss of Noah Scheinfeld’s passing. He was a passionate advocate of Hidradenitis Suppurativa patients and will be missed.”

The HSF board and staff 



2018 DPAF 5K Run/Walk Honors HS Foundation

The DPAF 5K Run/Walk honored the HS Foundation during the SDPA’s Annual Summer Conference in Seattle this past July with a very generous donation, raised through a combination of funds raised for the walk/run itself and through a matching grant from DPAF.  The event was their largest to date and had enthusiastic buy-in from SDPA members, conference attendees, their leaders, and their partners.

Below are a few photos of the event, shared through courtesy and permission of


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Announcing New 2019 Danby Hidradenitis Suppurativa Research Grant Program

Request for Proposals

Purpose: The Hidradenitis Suppurativa Foundation (HSF) is seeking grant applications that encourage research into the disease hidradenitis suppurativa (HS). The goal is to stimulate the development of new research programs in the field of hidradenitis suppurativa capable of competing for long-term funding from the National Institutes of Health or other agencies in the future.

Anticipated number of awards: 1-2 new grants may be awarded in 2019. Awards are contingent upon the availability of funds and the receipt of sufficiently meritorious applications.

Budget: Applicants may request up to $10,000 (direct costs only) per year.

Application Instructions: The HSF Grant application must be submitted through email to executivedirectorhsf@gmail.com as a single pdf. The application should follow the Format outlined below and include a project proposal of no more than five (5) pages.

Important dates: Applications must be received by Dec. 1st, 2018 at 5 P.M. EST.

Award notifications will be made no later than May 1, 2019, to start July 1, 2019.

Project period: The project period for this Request for Proposals is one year, from July 1, 2019 – June 30, 2020. All funds are to be spent within this period.

Eligibility: The principal investigator must be personally and actively responsible for the conduct of the proposed research, and eligible to apply for research grants under the guidelines of the applicant’s host institution. The HSF does not fund projects that are part of the NIH intramural research program or awards to private foundations without an academic affiliation to dermatology.

Review Criteria:

Reviewers will be asked to base their evaluations on the criteria listed below.

  • Relevance to hidradenitis suppurativa
  • Innovation
  • Likelihood of leading to additional funding
  • Strategy, methodology and analyses are well-reasoned and appropriate to accomplish the aims
  • Ability of investigator to accomplish aims

Potential problems, alternative strategies, and benchmarks for success are presented

Reporting requirements: Within 60 days of completing the approved project, the grantee is required to submit a written report summarizing their research experience and findings. The grantee must also present the work at an approved national or international meeting to be held within two years of funding. If an approved project cannot be completed as originally proposed or within the time limits mandated the grantee must immediately contact the HSF.

Questions: For more information on HSF Grants please send an email to executivedirectorhsf@gmail.com

2019 Danby Hidradenitis Suppurativa Research Grant Application

The application should follow the following format, with a minimum of 0.5 inch margins and minimum of 11-point font size, single spaced.

A. TITLE PAGE: Include the grant title, principal investigator’s name and affiliations.

B. ABSTRACT: Summarize the proposed research for a scientific audience. Abstract must not exceed 350 words.

C. LAYMAN’S STATEMENT: Summarize the proposed research for a non-scientific audience. This statement should describe the research question, the aims of the project, and the project’s significance with respect to HS. Layman’s statement must not exceed 200 words.

D. BUDGET: Each grant is limited to $10,000 for one year. Indirect costs are not allowed. Provide a budget summary, including a concise statement of how you propose to allocate funds (amount and for what purpose), List all personnel to be included in the project and their anticipated support.

E. BIOGRAPHICAL SKETCH(ES): Use the NIH format to provide a biographical sketch of the proposal’s principal investigator and any co-investigators who will play a significant role on the project. Each biographical sketch must not exceed 5 pages.

F. LETTER(S) OF SUPPORT: Applicants may use this space to provide letters of support from collaborators or supporting people/facilities/resources who will contribute to the proposed research. If the applicant is a postdoctoral fellow, a letter of support from the applicant’s immediate supervisor must be provided.

G. RESEARCH PROPOSAL: Research proposals must include the following four sections, maximum five (5) pages:

1. Specific aims: The goals of this one-year proposal should be succinctly stated. What hypothesis is to be tested? What do you intend to accomplish? Because this funding is intended to initiate projects that would qualify for additional future funding, please differentiate between the immediate aims of this project and related aims that would follow in year two or three.

2. Background and significance: Why is the research important? Evaluate existing knowledge in the field and specifically identify the possible contributions that your investigation may make.

3. Preliminary data/studies: Describe published or unpublished data that support your hypothesis, specific aims and/or experimental design.

4. Experiment design: Describe the experimental design, the procedures to be used and the manner in which the data will be analyzed. Descriptions of established lab procedures are not necessary.

H. REFERENCES: List of references cited.

I. HUMAN SUBJECT PROTECTION: Describe samples, risks, adequacy of protection against risks, and potential benefit. Applications related to research on human subjects must be approved by the institutional review board prior to the initiation of successful awards.

J. ANIMAL STUDIES: Applications that involve research on animals must demonstrate their relevance to clinical dermatology. Application involving animal studies must be approved by an appropriate institutional committee prior to the initiation of successful awards.



UCSF Dermatology Post-Doctoral Fellowship in Clinical Research

The UCSF Department of Dermatology’s Program for Clinical Research is thrilled to announce the availability of a 1-2 year postdoctoral research fellowship for starting July 1st 2018.

The primary areas of interest include epidemiology, public health and investigator-initiated clinical trials. The postdoc would join a dynamic research team that works on a wide range of topics: inflammatory skin diseases, hidradenitis suppurativa, atopic dermatitis, geriatric dermatology, skin cancer, and the use of social media in medicine.

Eligibility Criteria:

– US Citizen or US Permanent Resident

– Must have an MD or PhD by June 30th 2018

Research experience in study design and analysis and the use of statistical software programs is preferred. Applicants from groups traditionally underepresented in medicine (UIM) are encouraged to apply.

Interested candidates should submit their CV, a 1-page letter summarizing their professional goals and research experience and 3 reference letters by March 24th 2018 to Jeanette.torres@ucsf.edu.



  • The scholarship is available to students living with inflammatory diseases*, including psoriasis or HS, who are seeking an undergraduate or graduate degree from an accredited US university/college or trade school, and who plan to enroll for the 2018-2019 school year.
  • Scholarships of up to $15,000 each will be awarded, dependent upon the type of degree pursued.
  • Applicants will be judged based on academic excellence, extracurricular activities, written response to an essay question, and letter of reference.
  • Key dates and deadlines are as follows:

Applications will be made available on November 13, 2017 on www.AbbVieImmunologyScholarship.com.

Applications must be submitted by 12 p.m. CST on January 9, 2018.

Award recipients will be notified by April 18, 2018.