How many people in the US have HS?
What challenges have people with HS faced in getting a diagnosis and treatment?
How is HS care improving?
HS is common: More than 2.5 million people in the US have already been diagnosed with HS and have received treatment1.
That's about 1% of the adult US population.
Based on our observations,* we expect at least 300,000 more people to be newly diagnosed with HS every year1.
More than 5 million Americans are projected to have an HS diagnosis by 20351.
That's around 2% of the adult population.
In more than 50% of cases, patients have received 2 incorrect diagnoses per year before being correctly diagnosed with HS1.
Since symptoms started, people with HS have faced an average delay of 7 years before receiving a diagnosis2.
HS has affected all age groups1, with an average age of:
Females: 36 years;
Males: 40 years.
HS diagnosis
"Over 20% of patients have received surgical treatments1.
More than half of people with HS have been prescribed opioids to manage pain1.
HS patients have visited the emergency department 5 times per year on average1.
Additional treatments are being developed to provide more options for patients with HS.
treatments currently being studied in HS clinical trials3.
The use of biologics and other new targeted treatments is increasing.
Increase in the use of biologic treatments in 2024 compared to 20231.
New drugs are exploring higher efficacy thresholds, bringing hope to HS patients.
The main treatment goal in clinical trials is increasing from HiSCR50 to HiSCR75, elevating the bar for new treatments3.
Dermatologists are getting HS-specific training, and there is growing awareness of HS among healthcare professionals.
of dermatology residents now attend HS specialist training4.
SWIPE RIGHT
References:
1. Claims data research by MoonLake Immunotherapeutics AG covering claims from 2015-2025;
2. Ingram. Br J Dermatol. 2020;183:990;
3.
clinicaltrials.gov;
4. Internal data from HS Foundation.