Educational Videos for Patients

EDUCATIONAL VIDEOS FOR PATIENTS

Spotlight HS 2024 Presentations

Myth Busting 2024

As an HS patient, you're constantly seeking answers to so many questions. What information is correct? How can you tell what's true from what's false? Drs. Daveluy and Roth are here to help! Drs. Daveluy and Roth will help bust myths and teach you how to identify false information when you see it during the Myth Busting session of Spotlight HS!

Wound Care 2024

Wound care for hidradenitis suppurativa can be relentless. What works best? What do all of these dressings do? What works best for your wounds? Katie Scherling, ARNP, certified wound care specialist, will talk about the dressing options for the wounds many of us deal with and will also provide live demonstrations with HS patient advocate, Brindley Brooks.

Cannabis & HS

Discover the untapped potential of medical marijuana in the realm of Hidradenitis Suppurativa (HS). Join us as we delve into the uncharted territory of alternative pain management for HS patients. In this groundbreaking session, we will explore the miraculous workings of marijuana in alleviating pain and uncover why it has become a beacon of hope for our community. Don't miss out on this transformative journey towards a life of relief and empowerment.

Emotional Impact of HS

Living with HS affects more than the physical body. HS goes beyond skin deep creating emotional wounds as well. These emotional wounds often present as tension, somatic symptoms, anxiety, and worsening inflammation, yet it can be easily overlooked and go unattended to by healthcare providers. But, the truth is that when the pain and shame of living with HS infiltrates the skin, bodies, brains, and nervous systems of our patients — it leaves deeply embedded wounds that prescriptions and procedures can't get to. This webinar offers attendees a foundational understanding of what the healing of these emotional wounds looks and feels like from a somatic perspective.

Clinical Trials 101

Are you ready to take control of your health journey? Listen in for an enlightening session where we dive deep into the world of clinical trials. Discover the process of participating in a Hidradenitis Suppurativa clinical trial, gain invaluable insights into what it entails, and have all your doubts and concerns addressed by Clinical Research Coordinator, John Sobjoviak.

Spotlight HS 2023 Presentations

HS Pain Management

Pain management is one of the critical challenges of Hidradenitis Suppurativa. Dr. Kimberly Curseen joined us, in collaboration with Dr. John Ingram, to discuss different treatment options for the pain you or your loved one endures. The session covered the role that palliative care and other multi-disciplinary clinical options may play in comprehensive pain management, how to manage the pain, and how to speak with your physician about pain.

Current HS Treatment

Hidradenitis Suppurativa is such a complex condition with many avenues of treatment. How do you choose which treatment is best for you? Do you need surgery? Drs. Stephanie Goldberg & Raed Alhusayen spoke on current treatment options during Spotlight HS 2023 and provided insight on a range of medical and surgical treatment options with emphasis on when and how to combine treatments to achieve the best results.

HS Wound Care

HS wound care can be relentless. What works best? What do all of these dressings do? What works best for your wounds? Katie Scherling, ARNP, certified wound care specialist, talks about the dressing options for the wounds many HS patients deal with and also provides demonstrations with HS patient advocate, Brindley Brooks.

Nutrition & HS

Do you suspect that food influences your HS? Are you interested in learning more about nutrition for HS and how you can identify your food triggers? Nutrition can play an important role in managing HS. For some people, foods can contribute to flares and for many people, foods can help calm the inflammation in your body and encourage healing. Learn how to take control of your food and lifestyle triggers by learning how to use a food and lifestyle journal. Jillian Ondreyka walks you through her lifestyle including healthful real-food nutrition, stress management, sleep, relationships, and movement that can be integrated into your HS treatment plan.

Myth Busting

As an HS patient, you're constantly seeking answers to so many questions. What information is correct? How can you tell what's true from what's false? Dr. Daveluy is here to help! With the help of patient advocate, Christine Yannuzzi, Dr. Daveluy helps to bust myths and teach you how to identify false information when you see it during the Myth Busting session of Spotlight HS 2023!

Connecting with Other HS Patients

HS can be a lonely condition to live with. It can be hard or embarrassing to bring up the pain, itch, drainage, or odor you experience to friends or even family members. But you are not alone! More people than you may think have HS, and there are numerous support groups out there with individuals just like you looking to connect and feel understood. During Spotlight HS 2023, patient advocates Brindley Kons Brooks and Athena Gierbolini walked attendees through how to connect with other HS patients, where to look for support, and how to get involved.

Ask the HS Specialist

There are so many times as HS patients, or even as caregivers, where you have questions that go unanswered. Maybe your dermatologist doesn't know the answer or you're too afraid to ask. Dr. John Frew led an Ask the Specialist session during Spotlight HS 2023 where attendees had the opportunity to ask their burning questions.

HS Awareness Week 2022 Presentations

Management of Pain in HS

Dr. Lauren Orenstein reviews what is currently known about the causes and impacts of pain in hidradenitis suppurativa, self-advocacy for pain management, and treatment strategies. Note: This webinar was recorded in 2022 and management strategies and treatment offerings may differ now.

What Causes HS?

Dr. Michelle Lowes discusses the latest ideas about the causes of hidradenitis suppurativa, including the role of the immune system.

HS Summit 2022 Presentations

Psychosocial Impacts of HS

This webinar explores the mind-skin connection to hidradenitis suppurativa including the psychological, sexual, and social burden carried by those afflicted.

Wound Care

People with HS have various needs when it comes to wound care. In this brief webinar, we review the types of wounds and dressings that are appropriate for treating HS.

Pain Management

The webinar reviews the evidence base for medical cannabis and other complementary treatments for pain. The webinar also covers the role that palliative care and other multi-disciplinary clinics may play in comprehensive pain management and provides a few communication strategies patients can use when discussing pain with their providers.

Current Treatment of HS

This webinar educates the audience on a range of medical and surgical treatment options with emphasis on when and how to combine treatments to achieve the best results.

Complementary and Integrative Medicine for HS

During this webinar, nonprescription methods of managing HS are discussed, including lifestyle modification (nutrition, healthy weight management, physical activity, etc), supplements, clothing selection, skin care, pain management, and mind-body connection.