Research Summary

Is COVID more risky for people treated for an immune disease?

Hidradenitis suppurativa (HS) is a condition caused by an over-active immune system and many of the treatments influence the immune system. At the start of the COVID pandemic, many people were taking medicines, like injected shots, for HS, psoriasis or other conditions. In the beginning there weren’t a lot of studies showing the benefits and risks of the treatments. In a new study led by Dr. Rebecca Haberman of New York University and published April 2020 in the New England Journal of Medicine, a group of doctors studied whether people being treated for immune diseases had more severe COVID.

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Research

Global Registry for Hidradenitis Suppurativa + COVID-19

International HS experts have recently established the Global HS COVID-19 Registry to better understand the risk of infection and clinical course, track outcomes, and inform treatments of pediatric and adult HS patients in the setting of COVID-19. HS clinicians worldwide are encouraged to report ALL cases of COVID-19 in HS patients, regardless of severity – including asymptomatic patients detected through public health screenings.

Patients may also contribute to the Registry.

Information about the Registry as well as a link to report cases can be found at http://hscovid.ucsf.edu.

The success of this global collaborative effort depends on active participation by providers who care for HS patients, so broad sharing of the registry with colleagues treating HS patients is encouraged.

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Research Summary

New drug shows promise for Hidradenitis Suppurativa treatment

An early study for a new injectable treatment shows improvement in Hidradenitis Suppurativa (HS) activity and pain scores while demonstrating safety. Dr. Alice Gottlieb of Icahn School of Medicine at Mount Sinai, New York led the research investigating the results of bermekimab use in 42 patients with Hidradenitis Suppurativa. The results were recently published in the Journal of Investigative Dermatology.

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