Living with Hidradenitis Suppurativa (HS) can be challenging, but you don’t have to navigate it alone. A number of patient advocacy organizations are working to provide support, education, and community for those affected by HS. Whether you're newly diagnosed, exploring treatment options, or looking to connect with others who understand your experience, these organizations offer valuable resources and opportunities to feel seen, heard, and empowered.

 

The Association of Hidradenitis Suppurativa & Inflammatory Diseases (AHSID) was founded in 2020 by HS warrior and advocate Jasmine IVANNA Espy. AHSID is dedicated to increasing education, advocacy, and awareness to close gaps in care and empower individuals affected by HS and other inflammatory diseases—supporting them emotionally, mentally, physically, and spiritually.

Visit theahsid.org to learn more.

 

Hope for HS, founded in 2013 by Angie Parks-Miller and Dr. Melissa Williams, was the first face-to-face support group in the United States for those with HS, their caregivers, and loved ones.  Support group meetings first started at Henry Ford Hospital in Detroit, Michigan, with chapters now present in several other cities and states, with a list that continues to grow.  

Go to hopeforhs.org/online to find out more!

HS Connect is a patient-centered organization providing resources, support and solutions to the Hidradenitis Suppurativa community.  Passionate about helping others navigate HS, they personally know the toll this disease takes physically, mentally, emotionally, and financially.  Their goal is to change the narrative, eradicate the stigmas surrounding HS, and help educate as many people as possible, including non-HS specialty dermatologists, surgeons, caretakers, spouses, kids, partners, parents, family, and friends. HS Connect was created to empower those who have HS to share their stories, allow their voices to be heard, and ensure they’re not living alone or in silence.

Watch our video "We are HS Warriors" HERE and visit HSconnect.org to learn more.

 

The International Association of Hidradenitis Suppurativa Network provides help you need while promoting research to find a cure.
An estimated 1% of Americans have hidradenitis suppurativa. Many will develop other comorbidities and/or symptoms of mental illness. For over 9 years, we've provided advocacy, education, support, and community to millions of individuals impacted by this chronic disease. We won't stop until there is a cure.

Visit iahsn.org to learn more.